Alice Wong

Writer, Editor, and Disability Justice Activist Class of 2024
Portrait of Alice Wong

Increasing the political and cultural visibility of people with disabilities and catalyzing broader understandings of disability.

location icon Location
San Francisco, California
age iconAge
50 at time of award
social iconSocial

About Alice's Work

Alice Wong is a writer, editor, and disability justice activist cultivating a vibrant and diverse community of disabled people rooted in joy, abundance, mutual aid, and care. Wong is steeped in disability justice and uses the power of storytelling across various media platforms. She publishes personal stories that expose ableist attitudes, policies, and practices across a society that pushes disabled people to the margins. She also shares her own experiences navigating the world as a disabled person with a progressive neuromuscular disease. 

In 2014, Wong founded the Disability Visibility Project (DVP) to amplify the unfiltered voices of disabled people and explore the intersections of race, ethnicity, gender identity, and disability. DVP began with an oral history project encouraging disabled people to interview one another. It has since expanded to include a podcast, a blog, social media, arts projects, and spaces for connection and community building. DVP centers disabled people’s perspectives around topics such as opioid addiction, sexual abuse, mental health, economic insecurity, and education. Wong has edited two essay collections—Disability Visibility: First-Person Stories from the Twenty-First Century (2020) and Disability Intimacy: Essays on Love, Care, and Desire (2024)—that capture the diverse experiences of disabled people and the specific challenges faced by people of color, immigrants, and queer people who are disabled. Wong’s own writings highlight the shortcomings of systems of care available to people with disabilities. In op-eds, a column for Teen Vogue, essays on DVP, and her memoir, Year of the Tiger: An Activist’s Life (2022), she gives unflinching accounts of the challenges of living in the community with autonomy, rather than in an institution. 

Wong has also brought broader attention to the widespread ableism and prejudice disabled people face and to the policies that adversely affect them, such as the ban on drinking straws and the disuse of masks in healthcare settings. She used hashtag activism, such as #PodSaveJon and #HighRiskCA, to create change and bring disabled people together in conversation. In 2016, she co-founded #CripTheVote, a nonpartisan online movement that engaged voters and politicians in productive discussions about disability issues in the United States. In another line of work, Wong has helped found organizations that provide material and professional development support to disabled people working in different industries. One such project is the BIPOC Disabled Filmmakers Coalition. With visionary and committed leadership, Wong highlights and supports the work of disabled people, builds relationships and collaborations within the disability community, challenges social and systemic ableism, and increases the political and cultural visibility of disabled people.

Biography

Alice Wong received a BA (1997) from Indiana University and an MS (2004) from the University of California, San Francisco. She is currently founder and director of the Disability Visibility Project and a columnist for Teen Vogue. Wong served on the National Council on Disability (2013–2015), and her essays have appeared in The New York Times, KQED, and YES! Magazine, among other publications.

 

 

“In times of crisis, writers, like all artists, have a responsibility to speak truth to power—to say the unsaid, to think the unthinkable, to question narratives that frame what is considered the truth.”

“I am accepting the MacArthur Fellowship amidst the genocide happening in Gaza and indiscriminate terroristic attacks in Lebanon by the state of Israel on the 76th year of their occupation of Palestine. I stand in solidarity with the people of Palestine in their struggle for freedom and self-determination. Disabled liberation is intertwined with the liberation of all people. By being in community with others, I learned that mutual aid and community organizing are acts of love. I also learned that activism isn’t supposed to be palatable or convenient. Change cannot occur without friction in resistance to systems and institutions centered on accruing power. As a disabled person in a nondisabled world, I do not have the luxury to be apolitical. My writing is a form of activism—presenting ideas that provoke, inviting readers to interrogate their beliefs, and prompting action against ableism. Everyone has a voice and collectively we can move mountains.”

—Alice Wong

 


Published on October 1, 2024

Photos of Alice Wong

High-resolution photos of MacArthur Fellows are available for download, including use by media, in accordance with this copyright policy. Please credit: John D. and Catherine T. MacArthur Foundation.

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